Reaching out to those affected by SCI
        Inspiring the newly injured through role models and peer mentors
              Supporting individuals and families as they begin their post-injury journeys
                      Empowering those with SCI to fulfill their goals and dreams

Phone #: 781.933.8666                          A non-profit 501(C)(3) organization             Email: sciboston@aol.com



Case Studies

A List of Studies Needing People with Spinal Cord Injuries.
research studies
No Pain Study

Do you have a spinal cord injury?
If so, the Department of Anesthesia at Brigham and Women's Hospital is conducting a research study for adults between the ages of 18 and 70 with spinal cord injury without pain.
You will receive $75 for completing 1 visit. For more information, please visit our website at www.paintrials.org or contact:

The Translation Pain Group
(617) 525-PAIN(7246)
paintrials@partners.org


Spinal Cord Injured Persons' Experience with Adaptation to Spinal Cord Injury: Six Months, One Year, and Three Years Post-Injury

  My name is Susan DeSanto-Madeya. I am a nurse and an assistant professor of nursing at the University of Massachusetts, Boston. I am interested in examining the experience of adaptation to spinal cord injury at 6 months, 1 year, and 3 years post-injury.

  I am asking spinal cord injured persons over 18 years of age who were injured 6 months, 1 year, or 3 years ago to participate in one interview which will last appproximately 1 hour. It will focus on your experience of adaptation to living with spinal cord injury from your own personal perspective.

  If you are interested in talking with me about your experiences of living with spinal cord injury or have any questions, please call or email:

Susan DeSanto-Madeya
(617) 287-7510
susan.desantomadeya@umb.edu


Quadriplegic Participants Needed For Research Study

Patients who are quadriplegic from spinal cord injury, brainstem stroke, muscular dystrophy, or motor neuron disease such as amyotrophic lateral sclerosis (ALS) and have no or limited use of their hands are needed for an FDA regulated research study to evaluate a new technology which may allow an individual with quadriplegia to control a computer cursor by thought. This study is invasive and requires surgery. You must live within 2 hours of Boston, Massachusetts to participate. The study requires a commitment of 13 months. This study is being conducted by Dr. Leigh Hochberg at Massachusetts General Hospital.

If you would like to learn more about this study please contact:

Dr. Leigh Hochberg at (617) 726-4218.


SCI Health Study

Attention If You Have Spinal Cord Injury in the New England Area!!
Come participate in our spinal cord injury research study! We need your help!


A NIH-funded study is being conducted at the West Roxbury VAMC in Mass. to identify factors that may be important in the overall health of people with spinal cord injury. This study has been conducted since 1994 by Dr. Eric Garshick.

Your participation would require a time commitment of two and a half to three hours, and we would like to retest you every 2 years. The study consists of a health questionnaire, pulmonary functioning tests, and measurement of height, weight and arm span. Finally, you will have the option of having your blood drawn for tests that may help us understand why people with spinal cord injury develop certain health problems. We will compensate you $100 for your time.

You must be: 22 or older - Injured for at least one year - without other neurological disorders such as MS, polio, or ALS.
If interested, please contact:
Kirby Matthess
(617) 323-7700x36655
vasciresearch@yahoo.com


Pain Study

The Translational Pain Research Group at the Brigham and Women's Hospital is conducting clinical trials that evaluate various medications to help relieve chronic neuropathic pain as a result of Spinal Cord Injury. You may be eligible if you are:
  • 18-70 years old
  • Have been diagnosed with a Spinal Cord Injury
  • Have had chronic neuropathic pain for at least 3 months
For more information, please contact:

The Translation Pain Group
(617) 525-PAIN(7246)
paintrials@partners.org


Spinal Cord Injury, Community Inclusion, & Well Being

Persons with Spinal Cord Injury are needed to participate in a study that examines the relationship between environmental factors, community inclusion, and psychological well-being. A survey package will be mailed to you. Your time and participation is appreciated.

Researcher: Paul Falconer, Ph.D.(cand.)
Northcentral University
(617) 983-2021
paulfalconer@comcast.net




 Tel: 781.933.8666  
Fax: 781.933.0043  |   E-Mail: sciboston@aol.com
2 Rehabilitation Way  |  Woburn, Massachusetts 01801
Copyright Greater Boston Chapter/Rise. All Rights Reserved.