Reaching out to those affected by SCI
Inspiring the newly injured through role models and peer mentors
Supporting individuals and families as they begin their post-injury journeys
Empowering those with SCI to fulfill their goals and dreams
Inspiring the newly injured through role models and peer mentors
Supporting individuals and families as they begin their post-injury journeys
Empowering those with SCI to fulfill their goals and dreams
Case Studies
A List of Studies Needing People with Spinal Cord Injuries.
Do you have a spinal cord injury?
If so, the Department of Anesthesia at Brigham and Women's Hospital is conducting a research study for adults between the ages of 18 and 70 with spinal cord injury without pain.
You will receive $75 for completing 1 visit. For more information, please visit our website at www.paintrials.org or contact:
The Translation Pain Group
(617) 525-PAIN(7246)
paintrials@partners.org
If so, the Department of Anesthesia at Brigham and Women's Hospital is conducting a research study for adults between the ages of 18 and 70 with spinal cord injury without pain.
You will receive $75 for completing 1 visit. For more information, please visit our website at www.paintrials.org or contact:
(617) 525-PAIN(7246)
paintrials@partners.org
Spinal Cord Injured Persons' Experience with Adaptation to Spinal Cord Injury: Six Months, One Year, and Three Years Post-Injury
My name is Susan DeSanto-Madeya. I am a nurse and an assistant professor of nursing at the University of Massachusetts, Boston. I am interested in examining the experience of adaptation to spinal cord injury at 6 months, 1 year, and 3 years post-injury.
I am asking spinal cord injured persons over 18 years of age who were injured 6 months, 1 year, or 3 years ago to participate in one interview which will last appproximately 1 hour. It will focus on your experience of adaptation to living with spinal cord injury from your own personal perspective.
If you are interested in talking with me about your experiences of living with spinal cord injury or have any questions, please call or email:
Susan DeSanto-Madeya
(617) 287-7510
susan.desantomadeya@umb.edu
I am asking spinal cord injured persons over 18 years of age who were injured 6 months, 1 year, or 3 years ago to participate in one interview which will last appproximately 1 hour. It will focus on your experience of adaptation to living with spinal cord injury from your own personal perspective.
If you are interested in talking with me about your experiences of living with spinal cord injury or have any questions, please call or email:
(617) 287-7510
susan.desantomadeya@umb.edu
The BrainGate Neural Interface system is an investigational device that is designed to use the thoughts of a patient
to directly communicate with a computer. It was developed by Cyberkinetics, Inc. (Foxborough, MA) for quadriplegic patients
who are unable to use their hands because of spinal cord injury, muscular dystrophy or stroke.
The device is implanted on the brain's surface and connnects to a computer that will be used in the patient's home or chronic care environment. The study will last about 13 months. Because it is the first use of the device in patients, there is no guarantee it will be effective and there are risks involved with participation in this study. Potential study candidates must be in good general health and live within a 2-hour drive of the study site. Patients should be able to speak English understandably and give informed consent. They also need to have a committed family member or primary caregiver who can support their participation when the device is used at home. There are other inclusion and exclusion criteria.
The cyberkineticsinc.com website has further information on the company. Interested persons should call Jon Mukand, MD, PhD at (401-866-6600) to discuss the study.
The device is implanted on the brain's surface and connnects to a computer that will be used in the patient's home or chronic care environment. The study will last about 13 months. Because it is the first use of the device in patients, there is no guarantee it will be effective and there are risks involved with participation in this study. Potential study candidates must be in good general health and live within a 2-hour drive of the study site. Patients should be able to speak English understandably and give informed consent. They also need to have a committed family member or primary caregiver who can support their participation when the device is used at home. There are other inclusion and exclusion criteria.
The cyberkineticsinc.com website has further information on the company. Interested persons should call Jon Mukand, MD, PhD at (401-866-6600) to discuss the study.
Attention If You Have Spinal Cord Injury in the New England Area!!
Come participate in our spinal cord injury research study! We need your help!
Pain Study
Spinal Cord Injury, Community Inclusion, & Well Being
Come participate in our spinal cord injury research study! We need your help!
A NIH-funded study is being conducted at the West Roxbury VAMC in Mass. to identify
factors that may be important in the overall health of people with spinal cord injury. This study has been conducted
since 1994 by Dr. Eric Garshick.
Your participation would require a time commitment of two and a half to three hours, and we would like to retest you every 2 years. The study consists of a health questionnaire, pulmonary functioning tests, and measurement of height, weight and arm span. Finally, you will have the option of having your blood drawn for tests that may help us understand why people with spinal cord injury develop certain health problems. We will compensate you $100 for your time.
You must be: 22 or older - Injured for at least one year - without other neurological disorders such as MS, polio, or ALS.
If interested, please contact: Kirby Matthess
(617) 323-7700x36655
vasciresearch@yahoo.com
Your participation would require a time commitment of two and a half to three hours, and we would like to retest you every 2 years. The study consists of a health questionnaire, pulmonary functioning tests, and measurement of height, weight and arm span. Finally, you will have the option of having your blood drawn for tests that may help us understand why people with spinal cord injury develop certain health problems. We will compensate you $100 for your time.
You must be: 22 or older - Injured for at least one year - without other neurological disorders such as MS, polio, or ALS.
If interested, please contact:
(617) 323-7700x36655
vasciresearch@yahoo.com
The Translational Pain Research Group at the Brigham and Women's Hospital is conducting clinical trials that
evaluate various medications to help relieve chronic neuropathic pain as a result of Spinal Cord Injury. You may be
eligible if you are:
The Translation Pain Group
(617) 525-PAIN(7246)
paintrials@partners.org
- 18-70 years old
- Have been diagnosed with a Spinal Cord Injury
- Have had chronic neuropathic pain for at least 3 months
(617) 525-PAIN(7246)
paintrials@partners.org
Persons with Spinal Cord Injury are needed to participate
in a study that examines the relationship between environmental factors, community inclusion, and psychological well-being.
A survey package will be mailed to you. Your time and participation is appreciated.
Researcher: Paul Falconer, Ph.D.(cand.)
Northcentral University
(617) 983-2021
paulfalconer@comcast.net
Northcentral University
(617) 983-2021
paulfalconer@comcast.net
 Tel: 781.933.8666
Fax: 781.933.0043 | E-Mail: sciboston@aol.com 2 Rehabilitation Way | Woburn, Massachusetts 01801 Copyright 2006 Greater Boston Chapter/Rise. All Rights Reserved. |