 Reaching out to those affected by SCI
Inspiring the newly injured through role models and peer mentors Supporting individuals and families as they begin their post-injury journeys Empowering those with SCI to fulfill their goals and dreams |
|||
Case StudiesA List of Studies Needing People with Spinal Cord Injuries Research Study The purpose of this study is to describe any changes in physical function that people with an incomplete SCI may have as they go through middle age.
If you are interested in participating in this study or want to learn more, please contact Deb Armstrong, RN by e-mail at Deborah.Armstrong@umassmed.edu or by phone at 508.999.9245 (Please leave a message and I will call you back.) The Boston University Health and Disability Research Institute is looking for individuals ages 14 to 25 who have a diagnosis of traumatic Spinal Cord Injury (SCI) to participate in a questionnaire study looking at Quality of Life after a SCI. We want to learn about how SCI affects people's lives. Participation involves one 45-60 minute session, which can be done over the phone. You will be compensated $40. For more information, contact Kara Bogusz at 866-785-7040. If you are a man, age 20 to 40, with a spinal cord injury that left just your legs paralyzed, you may be eligible for a new exercise-focused research study at the Spaulding Rehabilitation Hospital and the Boston VA. The study aims to see if bone weakening can be slowed or reversed through exercise. Participants will use specially designed rowing machines and electric-stimulation of their legs 3 times a week for a year. The rowing program is free of charge, and participants receive up to $300 to help pay for transportation/parking. They also receive a physical exam, bone scans, and blood tests. The study is funded by the Department of Defense. For more information, contact the Bone Health Research Program: BonesSCI@Partners.Org or call Cathy, 617-573-2197.
Kevin O'Connor MD, Medical Director for Spinal Cord Injury Wei-Lee Liao, MD, Spinal Cord Injury Clinic Leslie Morse, DO, Bone Health Research Program J. Andrew Taylor, PhD, Cardiovascular Research Laboratory Based at Spaulding Rehabilitation Hospital, the goal of the Exercise for Persons with Disabilities (ExPD) program is to provide suitable exercise activities for health, leisure and sport for people with disabilities. The ExPD program has begun by introducing a new innovative form of exercise, Functional Electrical Stimulation (FES)-Rowing, for people with Spinal Cord Injury, MS, and Spina Bifida. FES is a technology that allows paralyzed muscles to contribute to whole body exercise. In this way both the paralyzed legs and innervated arms are under voluntary control and higher exercise intensities can be reached and sustained.
Currently to be in this program you must be at least 18 years of age. You must be able to follow simple directions and be able to reach a certain amount of range of motion in your leg joints (ankles, knees and hips). You will also need to be able to move your arms to participate and should have a good response to electrical stimulation of your thigh muscles. The physician must also agree that you're healthy enough to participate in this form of exercise and may require you to get additional tests to determine if you are eligible. For more information please contact Glen Picard at gpicard@partners.org
Do you have a spinal cord injury? If so, the Department of Anesthesia at Brigham and Women's Hospital is conducting a research study for adults
between the ages of 18 and 70 with spinal cord injury without pain. For more information, please visit our website at www.paintrials.org or contact: The Translation Pain Group (617) 525-PAIN(7246) paintrials@partners.org Spinal Cord Injured Persons' Experience with Adaptation to Spinal Cord Injury: Six Months, One Year, and Three Years Post-Injury My name is Susan DeSanto-Madeya. I am a nurse and an assistant professor of nursing at the University of Massachusetts, Boston. I am interested in examining the experience of adaptation to spinal cord injury at 6 months, 1 year, and 3 years post-injury. I am asking spinal cord injured persons over 18 years of age who were injured 6 months, 1 year, or 3 years ago to participate in one interview which will last appproximately 1 hour. It will focus on your experience of adaptation to living with spinal cord injury from your own personal perspective. If you are interested in talking with me about your experiences of living with spinal cord injury or have any questions, please call or email: Patients who are quadriplegic from spinal cord injury, brainstem stroke, muscular dystrophy, or motor neuron disease such as amyotrophic lateral sclerosis (ALS) and have no or limited use of their hands are needed for an FDA regulated research study to evaluate a new technology which may allow an individual with quadriplegia to control a computer cursor by thought. This study is invasive and requires surgery. You must live within 2 hours of Boston, Massachusetts to participate. The study requires a commitment of 13 months. This study is being conducted by Dr. Leigh Hochberg at Massachusetts General Hospital. If you would like to learn more about this study please contact: Dr. Leigh Hochberg at (617) 726-4218.
Attention: If You Have Spinal Cord Injury in the New England Area, come participate in our spinal cord injury research study! We need your help! A VA Rehabilitation R&D and National Institutes of Health funded study is being conducted through the VA-Boston Healthcare System to identify factors that may be important in the overall health of people with spinal cord injury. This study has been conducted since 1994, and this current portion of the study is focused particularly on bone health and respiratory health in people with chronic SCI. Through this research, we hope to understand why people with spinal cord injury develop certain health problems. Your participation would require a time commitment of approximately three hours, and you may be contacted for repeat testing. The study visit will consist of a blood draw, bone density scan, health questionnaires, pulmonary function tests, and measurement of height, weight, and arm span. Testing will take place at the VA-Boston Jamaica Plain Campus. You will be sent the results of your tests, and we will compensate you $100 for your time. You may be eligible if you are at least 22 years of age, at least one year post-injury, and without other neurological disorders (such as MS, polio, ALS, or previous stroke). If interested, please contact: Renee Mikorski (857) 364-4896 
The Translational Pain Research Group at the Brigham and Women's Hospital is conducting clinical trials that
evaluate various medications to help relieve chronic neuropathic pain as a result of Spinal Cord Injury. You may be
eligible if you are:
A study on a new intervention for chronic pain in spinal cord injury at Spaulding Rehabilitation Hospital. The goal is to find a novel method using noninvasive brain stimulation for the treatment of pain (therefore avoiding undesirable side effects of medications). For more information, please contact: Felipe Fregni, MD, PhD
125 Nashua Street #727 Boston, MA 02114 Tel: 617-573-2326 Fax: 617-975-5322 / 617 667-5216 / 617 667-5224 Fregni.Felipe@mgh.harvard.edu felipe_fregni@mail.harvard.edu www.neuromodulationlab.org www.clinicalresearchlearning.org Persons with Spinal Cord Injury are needed to participate
in a study that examines the relationship between environmental factors, community inclusion, and psychological well-being.
A survey package will be mailed to you. Your time and participation is appreciated.
Researcher: Paul Falconer, Ph.D.(cand.) Northcentral University (617) 983-2021 paulfalconer@comcast.net Participate in a discussion group if you are a smoker or have recently quit. |
|||
|
Tel: 781.933.8666